Child Inspires Me - By
inspiration from a child comes to
most parents before their child is
even born. Mine was no different.
I was given "genetic counseling" about
six months into the pregnancy. It
wasn't a clear diagnosis, but it
was given, just the same. Of course
I became overwhelmed and even a bit
manic. My pregnancy was good after
that until a broken ankle at 8 months
and pre-eclampsia to follow.
My miracle was born in the spring
of 2003 on a Friday night at about
8:30. She was my inspiration then,
but I didn't know it yet. I found
that out in mid-June of the same
year when her pediatrician noticed
the lines in her hands and the depth
of the bridge of her nose. Her chromosome
test came back as 76% affected Mosaic
Down Syndrome. Following my short-lived
anxiety attack, I went into our room,
stared at her beautiful little sleeping
face and picked her up. I held her
tight and didn't let her go. She
comforted me with her soft baby breath
in my ear and the gentle caress from
her fisted hand.
Your Inspirational Story
Along the lines of the "Chicken
Soup" stories, RMDSA would like
to inspire the world with our
own heartwarming stories and
words of wisdom.
From there, it was appointment after
appointment, trip after trip to Children's
Hospital, where they were a wonderful
part of my baby's life. My baby girl
was such a little trooper, hardly
complaining about the pokes, prods
and machines hooked up to her tiny
little body nearly every week. She
is one of the lucky ones, though.
It turns out her only health issue
related to Trisomy 21 is an underactive
She continues to inspire me. She
is a 4-year-old little princess who
doesn't want to share any of her
thoughts yet, but I'm sure she will
have tons to say once she figures
it out. She is as tall and weighs
as much as a 5 to 6 year old, after
only weighing in at 5 pounds 6.6
ounces at birth.
There are days when I see children
playing, or notice parents staring
because my child is different. She
can't quite climb the way the other
kids can, or swing all by herself.
It is also difficult at times to
watch the other kids running toward
mom or dad with arms wide open shouting,
"Mommy, Daddy!" However, I am so
pleased when my child isn't carrying
on in the store because she's asking
for something she can't have. As
wonderful as it will be to hear her
ask for something for the first time,
I know I am lucky my daughter is
content to play with me. Yay!
Every day of my life, I watch her
as she grows and thrives. She does
something new every day. I am sure
every child does that, but it seems
to be more inspiring to watch your
child come from so far. She inspires
me to become everything she needs
and as much as she wants me to be.
If not for her, there is really no
telling where I would be. In fact,
I'm pretty sure she saved my life
(but I suppose that is a story for
another time). I thank God for giving
her to me, although I don't know
what I did to deserve her. He, through
her, has taught me patience and understanding.
I have learned love and kindness.
I have seen and held beauty in its
most pure form. I am truly blessed
with inspiration, and every day is
different, but still inspiring.